Urine shows it is too acidic and CRP Level raised very slightly to 8 normal at...

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  • Xxxxxxx Yzzzzzz acidic urine suggests distal tubular acidodis a classic SS issue - it's in the literature i sent you . Acidic urine will tend to make the bladder and urethra very sore especially with SS meaning reduced mucosal protection so acid gets to epithelial cells. May also be IC and mast cell issues raised CRP is a marker of inflammation or infection! Tell your urologist to get a grip and stop pissing about.

  • The blood tests rheumatologist did were to check for acidosis but all bloods clear apparently. Kidney function good across the board hence why I was wondering whether acidic urine could just be a feature IC

  • I'm reading about antihistamine treatment if worth a try

  • I don't know how a blood test checks for tubular acidosis - maybe metabolic acidosis but that's a different issue distal tubular acidosis won't I believe show up on a blood as it concentrates H+ ions in the urine not the blood! Try anti hist. worth a try but may make your sicca worse it's a trade off. There are other mast cell therapies but probably not readily available in UK on NHS.

  • Xxxxxxx Yzzzzzz he said something about phosphorus levels and electrolytes but maybe have been talking about interstitial nephritis at the time

  • I don't think IC cab cause acidic urine it is the kidneys that do that the bladder is just a store

  • Xxxxxxx Yzzzzzz thank you you're great. I wish I could get off this merry go round!

  • Anna highly recommend waterfall d-mannose. Try speaking to someone at sweet cures - they are exceptionally knowledgeable and very helpful. My dad has used them for years and I have recently started since having 3 UTI's since Sept. Please skip the cranberry juice.

    https://www.sweet-cures.com/

  • This too may be of interest http://www.cranberryjuice.eu/

  • But she probably doesn't have a UTI unless it's candida or mycoplasma which wouldn't show up under "normal" culture tests. I have tried it and it did nothing for me. Did help my wife who had a UTI ( bacterial) :) But abx needed as she was hemorrhaging

  • I don't have an infection, never have had one since this started. I am having some gynae swabs tomorrow to rule out candida and any other cause of that type

  • Candida if it film forms and myvoplasma are VERY hard to detect by most standard methods. PCR anaylsis of swabs MAY show mycoplasma but not species.

  • Waterfall d mannose is also for IC

  • Please read the bit about IC and the way forward https://www.sweet-cures.com/cystitis-treatment-met hod.htm

  • Xxxxxxx Yzzzzzz it's also used quite successfully for IC. Would encourage anyone to just pick up the phone and talk to them especially re dosing etc.

  • Thank you Jayne Crocker this is a valuable sharing of information. I'll give it a go. I've nothing to lose.

  • Xxxxxxx Yzzzzzz will investigate further but I was taking 400mg and no effect I find rebamipide works best but I have to buy it n the :dark web: as it isn't available outside of Asia :(

  • Will they do bladder installations without cystoscope? Or try ic diet. It really does help

  • I use d-mannose and the doc said to take (4) 500mg caps in the morning and then again in the evening for a total of 8 caps = 4000mg/day. It works for my UTIs. A gentleman at Whole Foods said that women should be taking (1) 500mg d-mannose/day every as maintenance.

  • After my 90 year old mother started taking the D-mannose, she has not had another UTI, and hasn't stopped telling her geriatric friends about it. It is ONLY good for an E-coli infection, and that's usually going to be the kind that women get. Because of their less protective anatomy. I get the D-Mannose for her from Swanson's. http://articles.mercola.com/sites/articles/archive /2014/04/28/d-mannose-uti-prevention.aspx

  • Xxxxxxx Yzzzzzz actually Klebsiella is nearly as common much harder to detect and near impossible to treat plus mycoplasmas ditto

  • Even the E-coli can form biofilms if they get well-entrenched, and then they are also resistant to D-Mannose.

  • Xxxxxxx Yzzzzzz especially when treated with some anti biotics :(

  • I tend toadd a lot of Lemon Juice to my drinking water, to alkalinize my urine. Cuts down on kidney stones as well as other items. Rather odd that a lot of Citric Acid could cause an alkalinity to the urine. https://www.sweet-cures.com/how-to-make-your-urine -more-alkaline.htm However, note that Cranberry is one of the acidifying fruits.

  • In dRTA, isn't the problem that the body is too acidic and can't acidify the urine? Hence urine pH being too high after acid loading test is done. Correct me if I'm wrong.

  • Xxxxxxx Yzzzzzz you are correct that the blood becomes more acidic as less H+ is ecreted.