In May of 2014 we moved from our duty station in Canada to our new base in Nebraska. I was 3rd trimester knocked up and due July 20th, but scheduled for a general anesthesia c section on the 14th. Immediately after getting here I switched myself and our 2 children to almond milk. I noticed an increase in pain, but mentally blamed it on 3rd trimester pregnancy. But...even after an emergency c section (I fell...long story....) and over 3 months post partum....my pain levels were...off the charts. Intense, stabbing, and constant. After being decompressed in 2012....I had NO pain. It shrunk my syrinx enough that most of those symptoms and comorbidities disappeared completely. I never would have allowed myself to be pregnant again otherwise.
Me and 3 medical teams could NOT figure out what the HELL happened. A neurosurgeon here ordered a full spine MRI series with brain, flow study...with an without contrast. In the exam room when he walked in to give me the results and I had turned the lights off and was curled into a ball....he could SEE my pain but told me, there was just NO reason in those MRIs that he should be seeing me looking and feeling the way I did. Not from chiari or syrinx issues.
I didn't know it at the time but I was developing scoliosis in my lumbar. It hadn't showed up on that MRI in 2015 but a full year later in August of 2016...a chiro kinetic cracker backer found it larger than life on a x ray series he did. He assumed I'd had it all of my life. It was a HUGE curve. I brought my MRI discs in the next day. No scoliosis on them. He couldn't believe his eyes. He called his professors lol the ones who taught him in medical school. Showed them both series and they didn't know what to say either.
We were all Skyping in an exam room when I tossed out the comment that "...you know, in my chiari support grouo there are actually HUNDREDS of people that this HAS happened to. They discovered either through genetic testing or skin biopsy that they have EDS....Ehlers-Danlos Syndrome. Most of them were scoliosis free until they decompressed...then, their spines practically folded themselves in half somewhere in the column. Doctors...they tell all of us that those two have no causal link, but lop it is literally the ONLY change in their entire anatomy prior to scoliosis diagnosis. Teenagers, seniors, middle aged, young 30s...men AND women, but more women than men." They were recording everything so they could access the information again if needed but...they were experts in their field and had never seen anything like it.
I began drinking and consuming soy again this morning. My body is acting like it has been starved and stunted and has all of the sudden been sprinkled with pixie dust!
So....the list of common histamine trigger MATCHED AGAINST my A, non secretor blood type food chart is what I am about to be living on. I am sort of excited for this "experiement". Just wanted to tell everyone what I learned and observed over the weekend. I will try to find the most updated ERFYBT A food list and post it in the comments section before I sleep tonight. I have an appointment with my cardiologist today...busy, busy, busy!
Just an FYI for anyone wondering, there is "secretor" and "non secretor" status. Secretors are folk who generally and most often are able to kill off and ward off infections BEFORE they enter the blood stream.
So...NOT ME lol
By the information given, I am a non secretor...it has to get into my blood before I can treat it and the cinching factor is CLEARLY stated that D'Adamo USUALLY has to prescribe non secretors with antibiotics for DENTAL work....
Sound like anything else we know??? Vascular EDS prophylaxis drugs for dental work!
So...now I am very intetested to see if changing to Blood Type A diet changes...possibly reverses some of my EDS symptoms. Honestly, I am afraid to assume I am a non secretor based on that alone....what if eating WRONGLY for your blood type puts your body into such shock that it reacts like a non secretor simply because the immune system is HOBBLED by being bombarded by foods you can't process or digest...leading to a compromised immune system??? It IS possible.
D'Adamo sells secretor kits...but only after age 13 is a human supposed to test. So...somehow, this secretor situation is effected by onset of puberty possibly. Medicine and the human body fascinates me! lol I geek out to science like this. Hard. :)