Photos from Susan Schlenker Ingvaldsen's post

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  • Hi Susan. Where do you live? It looks to me like you'd be a good candidate for NA with the right doctor. Is it active right now?

  • I just had the xiaflex a month ago today after spending months mulling it over. I had fantastic results, but have now gotten a new nodule where the cord was. I am still splinting at night and doing my exercises. Let me know if you want more info. More than happy to provide details.

  • I am in Minnesota.

  • Look into NA.

  • Dr. Nicholas Meyer of Twin Cities Orthopedics may be able to help you. https://www.tcomn.com/

  • Thank you! That is where I saw a doctor last year but it wasn't him.

  • If you go to see PESS in new jersey, write me and ill cover your hotel room for you.

  • If your offer is still good after the first of the year, I'll take you up on it! I go on Medicare in January so I won't be limited to doctors in Arizona.

  • hit me up then. probably will still be good :)

  • Do not go through surgery in less you really need it. It's been 4 weeks today after my surgery and I am in so much pain and raw meat still.

  • I want to try Xaiflex or NA first.

  • Sorry to hear you are in pain.

  • I have had 3 surgeries and have always had cast like splint on for two weeks. Never much pain. Sorry you're in pain.

  • Xxxxxxx Yzzzzzz in the file section of the forum is a file that contains a link to the DDSG Flipbook (similar to e-read book). In the treatment section you can read about Xiaflex and NA. There are also links to member remarks on their experience with each treatment option. The key is finding the most experienced Doc. If you can travel to NJ or CA you would be in great hands with Drs Pess or Denkler.

  • I looked at it and felt discouraged . The post in Xiaflex were not good. Wondering if people that had good experiences dropped off../

  • I can't travel, need to find someone in MN. Thank you for your comments:

  • Xxxxxxx Yzzzzzz experience with Xiaflex is good. I truly think it depends on the experience of the doc doing the procedure. Find one that has done 100s. For me I would opt for NA with Pess or Denkler.

  • Xxxxxxx Yzzzzzz I would ask how many NA or Xiaflex treatments he has done.

  • here's some Doctors in MN; Surgeon NA-X Nicholas J. Meyer, MD www.stcroixortho.com St. Croix Orthopaedics (651) 351-2639 US Minnesota Stillwater 1701 Curve Crest Blvd., Suite 104 55082

    RO Dr. Kathryn E. Dusenbery Univ. of Minnesota Med. Center 612-273-6700 US Minnesota Minneapolis 500 Havard St., 1-140 55455

    RO Dr. Kenneth Dornfeld http://www.essentiahealth.org/Main/physician-locat or/Dornfeld-Kenneth-MD-PhD-300.aspx Essentia Health Cancer Center 218-786-3625 US Minnesota Duluth 420 E. First St. 55805

    Surgeon NA-X Dr. Marco Rizzo, Associate Professor Department of Orthopedic Surgery, Mayo Clinic (507) 284-3689 US Minnesota Rochester 200 First St. SW 55905

    Surgeon Amy Moeller, MD https://www.fairview.org/Providers/Bio/S_103638 Maple Grove Hospital US MN MAPLE GROVE 9875 HOSPITAL DRIVE 55369