Lyme Disease Treatment Plan — Lyme Disease Support and Wellness

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  • Dude, people need to be on probiotics & saccharomyces boulardii daily 2 hours apart from the antibiotics or just before bed again 2 hours apart so they don't cancel each other out.

    Also note; "there is no such thing as lymes" when those of us in the know hear people say this, it tells us they don't know as much as they play off = very green to say the least.

  • BTW. If you're in the industry and are here to sell anything, Please follow the group rules by contacting one of us admins.

    Thanks & good health to you.

  • Dude, you are close on some things but very misinformed on others.

    Note; Exercise or exercising can be deadly to a actively infected patient. It would be best to suggest to them; "try to do what you can as you can & please no cardio"..

Sometimes life just sucks I m being evicted which is half my fault He... — Behcet s Disease You Are Not Alone

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  • Xxxxxxx Yzzzzzz thank husband and I stood up for our neighborhood against a child rapist who was illegally living in our community breaking federal law (hud housing) turn our neighbor (mother of sex offender) filed so many complaints about our family that it has caused us major legal troubles

  • I'm sorry :( and no im hoping to come up with the money and then I can sue him.

  • I am so sorry, Cyndi! Maybe you or he could also call Salvation Army for

    Some help ! Prayers for your husband!

Lyme Disease Treatment Plan — Maryland Lyme Disease Support Forum

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  • Antibiotics only put Lyme to sleep. They do NOT work. Its poison and depletes bones, stomach and destroys your system. Many new articles out there today.

  • i agree. i had to include just to be safe.

  • healthy balanced diet, try to avoid greasy foods. make home made crock pot meals that slow cook all day. Bone broth.

I m full of questions tonight My doctor suggested reading the book Eat Fat Get... — The Low No Starch Diet for Ankylosing Spondylitis

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  • Sounds like a good book I might have to invest in

  • I have read some similar books by Gary Taubes recommended by my dietician

  • You're not missing out on anything,its rare and valuable that you found a Doc.who's willing to view medicine through a broader spectrum.

    Most naturopaths arent all that either,while cashing in on your money. The key is to find the right person,whether it be a doctor,naturopath,practitioner etc.

Since being on the auto immune protocol diet my ESR blood numbers sediment... — The Low No Starch Diet for Ankylosing Spondylitis

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  • I'm not exactly sure sorry. It was to test 184 Foods. I'll no more in a couple weeks and I'll ask for the name of it. I'm so bad at remembering the test names.

  • Ly Kim That's ok! It was probably igg or mrt! I did the mrt

  • Thats amazing!

Had my hip surgery done on the 3rd of this month I am very sore but able to... — Lupus SLE (systemic lupus erythematosus) Has An Impact On My Life

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  • So sorry to hear that. Yours sounds like it'd be harder to recover from then from a total hip replacement. I have had both of my hips replaced and it was painful afterward that I think your situation would even be more difficult. Don't push too hard because with our disease it can cause a flare and your other symptoms to get worse

  • Yes I have had a fever and feel achy all over today...I think it may be a flare I do not know...I have Fibro...So that can be an issue too..If not better in the morning I am gonna call my doc...

  • Take care of yourself & remember that we are pulling for you.

Thyroid question My FSH level blood came back with 119 51 Is this normal for... — The Low No Starch Diet for Ankylosing Spondylitis

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  • My obgyn just did a FSH test on me and my level was 15. I am not in menopause. I'm 50. That test just lets you know about menopause. To check your thyroid levels you would need a TSH test at the very least. You could also get your t3 and t4 levels checked too.

  • Follicle stimulating hormone tells you what phase you are in. Perimenopause, menopause, post menopause. Doesn't have anything to do with thyroid.

Hello to all I am 45 years old I have type 1 diabetes they suspect is... — Dupuytren s Disease Support Forum

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  • I will. And I will keep you posted.

  • Xxxxxxx Yzzzzzz not many RO's in this country have treated PD with RT, but Dr. Guy Jones has. I'm not sure if RT for PD is on the list of questions for your RO, but we have a Coffee Talk on PD and some comments included from Dr. Jones on that thread. It was hosted by Ernst Gislason and is in Files. I may also be able to put you in touch with another member who has had RT for PD with a very good outcome.

  • I will look it up this afternoon

Hi everyone Iam wondering if anybody has some advice I have been thinkin a lot... — Henoch Schonlein Purpura support forum

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  • Yes I do I'm going to see them on wed so I'm planning on having a good talk with them thank u X

  • More common than any of the varied HSP symptoms, is the universal experience sufferers have of seeing doctors who know little or nothing about this nasty disease. I'm afraid I have no answer to your question, but I wish you Good Luck and hope you find someone with the answers you need.

  • I know even the renal drs who r great with the kidney issues really are not do clued up on the rest of it I do fear I may have a long struggle ahead but will wait n see thank u everyone x

Let me introduce myself Diagnosed in July 2013 at age 65 I had just finished 2... — Runners with Rheumatoid Arthritis

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  • During races the feet flair around mile 8 and later the ankles. My knees gave me trouble for a long time (did several races with a walking stick) but turmeric has resolved the knee issue.

  • My last spontaneous flare up was after 2 days without turmeric. It does something.

  • Amazing stuff.

Photos from Karen Lipscomb West's post — Dupuytren s Disease Support Forum

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  • Xxxxxxx Yzzzzzz : The only hand surgeon listed on, for my immediate area, is the one I have already visited. I guess I am going to have to travel.

  • Yes, that is a problem for so many of us - finding hand surgeons nearby who are very highly skilled in minimally invasive options. Since you are on the east coast, I highly recommend Dr. Gary Pess.

Can anyone give me their experience with CBD oil. How it makes them feel — Christian Lyme Disease Support

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  • Nope. Just under my tongue. Hold it there for about 30 seconds then swallow. No need for water.

  • I use THC too. Has helped a lot. THC activates many of the healing components of the CBD. But before I moved to Co the one still helped me a lot with symptoms.

  • That's awesome I think it honestly really does depends on how sick you are. I think I was on my deathbed to tell you the truth. Now I am ok.

️ — Lyme Disease Awareness in Dogs

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  • That's crazy. I'm so glad she's doing well!!

  • The most dangerous times for the spread of lyme is February to April, (at least in my area). Something about younger ticks spreader lyme more easily. People tend to worry more in the summer because that's when you see more of them but you should be checking all year round.

  • Interesting! I didn't know that. Thanks!

My son was asked to write an idea for a law to submit to a local Senator — Lyme Disease Support Forum

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  • Testing needs to be concrete and reliable. Doctors need to relearn about what Lyme can really do. The general public deserves to be informed about what Lyme can do. Treatment research needs to be serious and fast. Disability needs to include the spectrum of Lyme and its ability to disable and cause families financial ruin.

  • Affordable treatment and reliable testing.

  • Allowing physicians to prescribe long-term antibiotics etc... without reproductions from the medical board. I'm in NH so this is not true here but in other states this is very common.

A friend of mine is telling me to do stretching of my affected dd hand — Dupuytren s Disease Support Forum

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  • Xxxxxxx Yzzzzzz

  • I know this is contrary to the standard thought on stretching but I do stretch my pinky and wear a splint at night. It was so tight against my palm that I couldn't even get my thumb between it and the palm, and it was getting numb and I couldn't rub it. I never stretched enough to cause pain, but now can easily rub it and can get it on the outside of the steering wheel although probably not a good idea as it might get stuck in an emergency maneuver.. As everyone says "everyone's disease is different." I wish I had splinted the fingers as they were contracting because I could see them contract further every night.

  • I'm so sorry

Can anyone give me some advice please My son 4 years old wakes in the night... — parents of children with hypermobility syndrome

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  • Not sure x

  • You could ask but i dont think its something gps offer, we brought ours from Boots, i just apply before and after school and he has pain meds in school if needed, but there os a tube in school he can ask to apply himself as it isnt prescribed school cant do it

  • I read an article on hypermobility last night and the connection to an over reactive pain sensor in the brain. Distraction like music helps switch the sensor in the brain off. It's apparently more of a neuro distraction than psychological. I tried it on my daughter last night and it worked a treat! She calmed down amazingly quickly, then I gave her legs a gentle massage, some Capol and she was happy!

So my shoulder has been dislocating more and more often I ve been having... — Ehlers-Danlos Syndrome Support Forum

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  • Dysautonomia International has a financial assistance program. They may be able to help with the cost of a brace.

  • I have the same problem with my ankle in the last summer I actually broke both at the same time ,I had braces made but they hurt more than they help

  • I can't go up and down steps both knees dislocate ,my right shoulder ,my thumb and stay in so much pain on daily basis

You guys I m so miserable I haven t been real vocal lately as I ve been super... — Butterflies - Lupus Survival Forum

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  • Thanks! It makes me wonder if my skin lupus hasn't progressed to SLE. I hope not, but I know the risk exists.

  • As I say pcp is for runny nose. Go to ur specialist.

  • Yes sounds like a flare to me. That was one of my symptoms...a fever that wouldn't go away after taking Tylenol or Motrin for days. Prednisone was the only thing that helped.

Photos from Dot Busch Droege's post — Behçets Syndrome Society

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  • Omg since age 6. I cannot imagine e the relief u must have felt. For me, I've hap relapsing polychondritis for about 29 yrs. The behçets stuff started showing up maybe 8 yrs ago. I've got white matter brain lesions too which are not sure if they are from RO, BD or sjoegrens. I too cuz u can't ever get a damn appt when ur flaring. Finally I saw my rheumy during g a flare and she sent me over to derm for a biopsy. They looked at me and aid typical RP and prob behcest...AKA MAGIC syndrome. So i. Magical! Hahaha. I'm actually Wiccan so the name fits!

  • I've heard of the center for excellence a bunch now thru RP friends in the UK. Sounds like rhe best place to go

  • Dot Busch Droege The CoE's have made a positive difference in getting people diagnosed, but getting the care you need from them after diagnosis seems to work better at some centres than others.

Muriel Just read your post about a new NEOD trial RAIN for those with kidney... — Amyloidosis Support Forums Inc

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  • When is it expected to open? I couldn't find Muriel Finkel 's original post. This is exciting.

  • Nor can I Justine. I would like to read it too.

  • So many good responses from Darat. Let's hope remission rates prove to be good too. To early to know much. Micheal York's wasn't. He's now back on other treatment.

These are my age group results from the Tuscaloosa Half Marathon yesterday — Runners with Rheumatoid Arthritis

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  • Congrats! I am a slow interval runner, and sometimes it really gets me down that I can't continuous run. Your post gives me the encouragement to keep doing what I need to do and can do at this time and the results will be better every race. Congrats again!

  • Even when I was winning age group awards, I always included some walking in longer races. The only difference now is my running pace is slower and my walking intervals are more frequent. My first sub-2 hour half marathon included a 1 minute power walk every 2 miles. My first sub 4 hour marathon included 1 minute of walking after every mile.

  • Congratulations!!!

I was diagnosed with AS a little over a year ago My Rheumatologist prescribed... — Living With Ankylosing Spondylitis

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  • Thanks Dawn!

  • LDN--working for me

  • LSD is where I am now.. and it's working great for me.. If I was to give you one word of advice, it would be to start with a autoimmune elimination diet (paleo has a pretty good one) and to pay attention to what your trigger foods are when you get to the point of adding different foods back in. I have an egg sensitivity and missed identifying it for a while, caused me lots of pain filled days! Good luck and You got this! :D

I am now into my third week of having costochondritis and was wondering how... — Costochondritis is a pain in the chest... literally

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  • What's A&E? Is that like an ER?

  • Yes. Here is the UK it is called Accident & Emergency, shortened to A&E.

  • Mine started 3 months ago after my daughter, thought i was having a heart attack.... basically i over did it straight away when coming home from the hospital

Hello I ve just joined I have recently been suffering from Arthritis in my... — Arthritis Sufferers United

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  • Yes, you need to see a rheumatologist. I take Celebrex,it is an NSAID but it is starting to damage my kidneys so my PCP does not want me taking it any longer. I just discovered Olbas oil at the natural food store today and will use it tonight before bed. Until I had thumb reoconstruction the orthopedic hand doctor was giving me cotosone shots in my thumb joint to ease the pain. Same for my knee. I finally had my knee replaced a few years ago. I had an ankle replacement in November.

  • Thank you Cheryl Lynn Sieve Lowe

  • Thanks Susan Cardin

I have a question. My mom who had AS and HTN and Diabetes takes lots of meds — Living With Ankylosing Spondylitis

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  • I'm sick most days and used to vomit all the time now it's just sour tummy most days...

  • Ginger or even canabis will help with the upset belly. Natural remedy instead of OTC crap.

  • What med combo works for you that they are trying to take away? I cannot take nsaids either and the Drs tells me that's the main treatment and theirs nothing else for as pain

DOWNSIZING to better manage life — Dupuytren s Disease Support Forum

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  • It's one of the great joys of getting older - experiencing the freedom that getting rid of superfluous stuff brings!

  • As a community nurse I see many people living in homes that essentially trap them inside. Or contribute to difficulties later as the layout or facilities restrict mobility. The stages of life are an important consideration. Building or buying a home that aids ageing in place or expected debility eases these problems & increases quality of life.

  • Thank you! I went my doctor and had and after

    a lot of x-rays, found out some new things, but,

    thankfully, no fractures, just bad ankle sprain and

    knee. I will put those treads on the steps. It has raining a lot here in Texas!

I m really having trouble wrapping my head around this I m esp interested in... — Ehlers Danlos Syndrome and the Cusack Protocol

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  • Ill try to help. Are you more DIY or looking for specific products? Im mcad but do better with ferments than many and in very reactive to foods so i mostly diy things.

    My two may helpful things personally are chicken bone broth made with lots of feet in a pressure cooker to reduce histamine.

    And home fermented probiotics line water kefir, coconut milk kefir, salt brined veggies, and ginger bug

  • Xxxxxxx Yzzzzzz you for your offer to help. Unfortunately, I have done all the things that are working for you DIY, as you say, (save the coconut milk kefir) and none of them worked for me. It's too bad too because I enjoyed growing all the cultures, and some of them were divinely delicious ! I also find myself intolerant of L. Plantarum, and B. Infantis. However, I seem to tolerate at least one capsule of Culturelle per week. I would like to expand on this tiny crack, but I don't don't how. Dose ? Schedule ? I'd like more information if possible before I dive in willy nilly.

I m relatively new to this Group and love it I don t know if this has been... — Sjogrens Sister s Support Forum Private

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  • No, I get the methylated

  • OMG I had a miscarriage in my 20's and depression most of my life. Wow just wow!!

  • You can also do the 23 and me genetic testing and then run it through another program for 5 bucks and it will give you all kinds of information on your results. Or you can ask your dr to do the test. Most don't even know what it is. A homeopathic dr and a psychologist would

My poor Aaron 6 came down with bad neck pain and photophobia headed to walk... — parents of children with hypermobility syndrome

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  • We had a horrid time last year with FII accusations due to seeing prof grahame private... so really doubious of asking for second opinions now but i really do believe he needs more than antibiotics as he's struggled all night

  • I would give him a lolly ice it doesnt involve as much swallowing as drinking does. The swallowing motion is much easier than gulping and ring his doctor and see if they can move up his surgery date. I hope he's feeling better soon. I had tonsilitis in January and it was awful. xx

  • Can anyone recommend a good consultant who woukd diagnose EDS , my 12 yearold has JHS but i am sure he has EDS.

Could I ask if I m having a flare up or is this to do with newly diagnosed OA... — Osteoarthritis sufferers and rumatic arthritis suffers

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  • Thank you.never had this all over before..scary xx

  • Is that what it is Lanna..I've never felt this before.So horrid.Sending a hug back..hoping it doesn't last too long..its morning now and my pain isn't as knawing but still there xx

  • Thank you Flowr xx

I have been on LDN at 4 5mg for exactly a month The first two and a half... — Sjogrens, Lupus, RA, Scleroderma Low Dose Naltrexone (LDN)

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  • It is my understanding that myelin is supplied by oligodendrocyctes to several nerves around each cell. Therefore something which damages myelin in some way will damage oligodendrocytes too because oligodendrocytes are the source of myelin.

    There's various theories as to the reason for the damage to myelin. One that makes sense is that if you can reduce the activity of T cells, microglia and astrocytes, it is believed myelin damage will be less.

    Taking LDN and benefitting from the rebound effect will help by reducing the activity of these cells but obviously does not stop the problem dead. We know that OGF is known to control the microglia, macrophages, astrocytes, T and B cells which we think will help towards managing progression.

    But yes, there's many a question as to whether a disease is considered or labelled as 'autoimmune' or 'neurological' or 'vascular' or perhaps 'a disease of oligodendrocytes' might be a better description for some diseases?

  • Xxxxxxx Yzzzzzz are a great thinker!! In the end it is all so very fascinating, but I also do hope that some day one of you will hit it right and the cure will be discovered.

  • Xxxxxxx Yzzzzzz is very interesting that in 2005 I developed an acoustic neuroma which is a Schwannoma. So an over proliferation of schwann cells that usually supply the myelin on the peripheral nerves. And now a demyelination of nerves in my brain and spinal column. One thing I can say is I can surely compensate!