Nine years I have been through an extreme amount of physical pain I wouldn t...

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  • We are fighters and survivors Kelli. Congratulations to you, and I wish continued success in your life, and remission for a long long time. God bless.

  • Blessings Kelli! I hope you continue whit this good attitude! Hugs!

  • Thank you for helping other understand this illness.

  • Well said!! My son was dx 10years ago with Wegeners, he had just turned 18. He is doing good! Give your Mom a hug for me!

  • What an inspiration!

  • What a great attitude! ! You are beautiful inside and out!!! It is great to be reminded that we are not alone in this ugly battle of Wegner's! ! What a beautiful and positive person you are!! God Bless you!

  • Thanks, my husband and I needed that. God's Blessings to you!!!!

  • You are inspiring! And....how do you get your hair and makeup done, and such pretty nightgowns while in the hospital? Can we bring our own???????

  • Thank you so much! I do my own hair and makeup :) Been a performer since I was three years old..So that helps! :) In most of the pictures you see I was wearing a comfy t-shirt and sweats because I was allowed to wear that for my infusion. On a couple of my infusions they preferred I wear their hospital gown. Just ask your Dr what you can wear!

  • Thank you so much!! Glad it could help you both!!

  • Thank you so much for your kind words!!! I really appreciate that ❤️ all the best to you!!

  • Thank you!! :)

  • Ten years! Wow diagnosed at eight years old. Blessings to you all. Hugs right back!!

  • You're welcome! With a lot of determination there is a light at the end of the tunnel.

  • Thank you so much!! I truly appreciate that! Blessings right back

  • Thank you so much!! We are indeed a rare breed of fighters.

  • Wise words, you are very inspirational.

  • Thank you so much!! ❤️

  • Xxxxxxx Yzzzzzz you are very welcome

  • Truly inspirational Kelli - many thanks from a fellow WG/GPA sufferer

  • Thanks so much Mark! Hope you are doing well these days!

  • I have just joined this group and have yet to post my story but yesterday was my 1st anniversary. Not deteriorating but don't appear to be improving much. Compared to many I have little to complain about I have come to realise. Your post just touched me - thanks again

  • The first year is always very hard. Every battle in so unique and difficult. Always have courage and keep on fighting. Prayers for better days ahead