My life story almost read today Mother of two almost died while trying to...
Yes, you are right, Shannon, the struggles are real! You reminded me of my first Sjogrens situation. I was eating something that wouldn't go down my throat at a
Carnival. I panicked
not realizing what dryness could do. Hadn't learned to always carry water!
My first and last time to step out of the house without water!
Glad you are OK now. Assure your daughter it wasn't her fault.
It's so hard to swallow most things. I hate getting choked!
I made a similar mistake picking up burgers and fries for my son and hubby, without buying drinks. Tried to eat a curly fry, and chocked all the way home. Almost pulled over to use someones hose. :( Very scary, to say the least. Hey, don't like curly fries anymore. lol
She didn't even know. I was heading up stairs and was 50/50 to both water sources....I ran up stairs to my bedside table with my water. I totally should have known better. Can't even eat a saltine without water. It was my husband in the bedroom I had to reassure...I freaked him out. We had a good laugh after but seriously, it's a real thing. Scary.
Seriously. I will not eat something that is offered if I don't have water. Who eats saltines and they turn to dust in your mouth with out water. Almost comical.
I'd be more worried about the bun. Fries...No, can't give up some fresh 5 guy fries. LOL
You have to be able to laugh at yourself, but the struggle is real. It's a very frustrating side effect. People so don't get it. My hubby and kids do, they know "the look" if I need water asap. I've had to pause on a meal at a restaurant just because I know another bite without food...Nope. Mexican and the basket of tortilla chips...Why don't they bring water at the same time! I don't eat those without fluids close by.
Oh, I know. Hard to eat out. Hard to snack.
No kidding on the mexican food. Ugh... My family is used to me choking all the time. My hubby and son always watch to make sure I am ok. Then we kinda laugh. But, I am always super careful when around others that just wouldn't get it. Only eating things that swallow easily.
Before I got my "formal" Sjogren's dx (although I probably went undiagnosed for decades), I'd started having periodic choking spells severe enough for the Heimlich maneuver - which I
taught my Hubby do and I can do by myself if I'm alone.
Eventually (after dx), I was referred to a GI dr and I had an EGD w/ dilatation of my esophagus (along with a colonoscopy). I've heard that some of us have to get dilated almost annually and although the procedure wasn't painful, I'm hoping to avoid a repeat.
I do try to be very careful when I'm chewing/swallowing but sometimes I choke on the smallest things.