Met with my gp today for the first time since being diagnosed by the one who...

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  • So pleased to hear this good news - you have done so well to get the information you need and advocate for yourself. As you say Leslie Wieslander Rosenthal is totally brilliant at helping us all find out what we need to know!

  • Thanks Rose! And yes she is!!!! Think that was the first thing I learned here.

  • Now that's a really great report! Nice work Sue and great attitude. You are going to beat this disease into submission. Go get 'em!

  • Thanks so much Leslie!!! Think I may have mentioned before that between my husband's MS and my fibro I have been involved with other FB groups and left them.....NONE compare to the solid information and support here!!!!!!!!

  • That is so nice to know! I empathize so much with dealing with your own diagnosis and caring for a spouse at the same time. Somehow you just dig really deep and hold it all together! This group and all of you saved me!

  • We have no family here .... even our kids and spouses live elsewhere in the country .... however we do have 'family' in wonderful friends from our church community for emotional support. Chronic disease can be a lonely journey though.

  • Wish you the best!!

    I live in Westland, Michigan and am trying to see how many others with DD would join a " Meetup" locally?

  • Xxxxxxx Yzzzzzz have a look at the map and see if you can find other members. They are mostly noted with initials, but you can likely then match those to our member list and further identify them.

  • What map?? Sorry , new to this

  • Xxxxxxx Yzzzzzz if you go to the welcome message there is a global map of our members and you can pin yourself on the map instructions are all there in the welcome. You can also find other members. Let us know if you have any questions

  • Thank you! Keep up the good work

  • It's gratifying when a member posts positive news like yours! Leslie Wieslander Rosenthal and the other Admins (and members) in DDSG feel like "YEA, someone listened and read, read, read". My personal thanks for your activism. You encourage the rest of us.

  • Xxxxxxx Yzzzzzz I live in sterling Heights and am interested. I have chatted with Sarah Bush who is from Livonia. I have had a lot going on this past week or so but things should be settling down soon.

  • A Plan of action - isn't a wonderful feeling!! And you were 100% involved in making informed choices. How awesome is that. Thank you for sharing.

  • Thanks Roberta! I guess we all spur each other on! So much encouragement in the stories here!

  • Yes Denise it is! Thanks for your encouragement!

  • Thanks for responding , hope your week goes well. Lets see who else is near by who's interested.