LCV PAN Eyrothema Nodosum So I m stressing about my first Rutuxin infusion...

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  • Melody call me or I can call you? (815)276-9339 I have had 10 Rituxan infusions. It has saved my life. I would love to talk to you.

  • Melody call me or I can call you? (815)276-9339 I have had 10 Rituxan infusions. It has saved my life. I would love to talk to you.

  • So good talking to you Melody. Be unafraid and go get that REMISSION!

  • Xxxxxxx Yzzzzzz, you are an angel sent to me by the Lord!! I'm so glad we got a chance to talk!! Thank you, thank you, thank you....

  • Just want to wish you luck and hope it goes well for you. My daughter gets Rituxan every twelve weeks, but it hasn't been a miracle drug for her. She didn't start to improve until starting Actemra and Cytoxan. I am sure without Rituxan she may be worse, so I am hoping it does something positive. I hope it's just what your body needs and will work well for you as it has for so many others. Her rheum did tell us if you're going to have a reaction, it's usually only w/the first one. My daugther did very well during her first one and afterward developed a fever and chills and some joint and body aches, but they went away by the next day and she didn't have any particular side effects. They usually premed w/benedryl and steroids and maybe tylenol.

  • Thanks for sharing Audrey Galler Lopez. I'm sorry that it didn't work for your daughter. The Cytoxan didn't work for me...Believing for the best with the Rituxan!

  • Hey Wendy- we're Gainesville bound on Friday... any chance you'll be there? Oddly enough, she's due for Rituxan among other things. We'll be there thru Sunday (ish). What good things has Rituxan done for lil' Abby?

  • Melody McGruder How did it go today??

  • WG - I've had years of prednisone, cytoxan, methotrexate and imuran. Last year I had a really bad flare after going off prednisone after 30 years and only being on imuran. Subglottic stenosis down to 2 mm and my Cleveland ENT and Rheumatologist freaked. Had two rituxan infusions in November and am doing better now. It didn't bother me as much as methotrexate did, but I was told it was slow acting and kept waiting to wake up one day feeling much better which never happened. Guess it helped my overall health, but not for sure because I was bumped back up to 40 mg prednisone, imuran and the rituxan. Only down to 15 mg pred now. I was so hopeful and wanted it to be "the" answer.

  • Wow Jane I have a lot of questions about your treatment. Why not 4 Rave Study Infusions of Rituxan? Did you have surgery to open your airway? Are they monitoring your B cells at this point?