I want to share the wonderful experience that I had last week during my first...

4) I provided a written out history and dates of my disease, including photos, and thoughts as to contributing factors (like my cat bite infection of my 3rd finger). I actually printed out my introduction story that I had written for you. When asked "what. brings you here today", rather than repeating myself with each new interviewer, I just handed them my written history! This saved time and was probably more accurate and consistant.

5) I had downloaded some drawings of hand anatomy and had drawn on the pictures where my hands were having problems, pain, stiffness, lumps, etc.

6). Lastly, I had several scientific papers on the subject of RT printed out with notes in the margins and areas highlighted. I think the presence of these showed that I took the whole process very seriously and it showed that I had educated myself, which added to the overall mutual respect and rapid progress.

I had to chuckle to myself several times as I waited behind the closed door, as I heard the nurse tell the resident, and then later the resident told Dr. Bajaj, "this person has an amazingly complete history and records to present to you… "

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  • Well

    Done & great advice!

  • Thank you for your advice! This is the first time I have read about blood work prior to seeing a doc for RT . Have I missed these necessary blood work up in a previous write up? Leslie Wieslander Rosenthal, are you able to answer this question ?

  • I'm bookmarking this!!

  • Just to say, I saw Dr Bajaj and i TOOK NOTHING with me! He examined my hands and feet and set me up for RT. So dont worry if you DONT have all the medical records, it didnt seem to matter for me. I just told him my Dr said I had it, thats all....

  • see my reply below

  • Timely advice...I'm going to have to have RT as the verapamil has only partial worked.

  • Jane, we have discussed suitability for radiation therapy in many coffee talks so it's important to read through all of the coffee talks hosted by our radiation oncologists. Certain auto immune diseases such as lupus might be disqualifying for RT.

  • Xxxxxxx YzzzzzzGraves . I had just read so many accounts where progression from original Dx to RT seemed to be drag out for months, I wanted to be sure that didn't happen to me. And, since I did not have another Dr recommending RT, and had to self-refered myself to Dr Bajaj, wanted to have a solid case for review.

  • Xxxxxxx Yzzzzzz thank you! I will look this up

  • Xxxxxxx Yzzzzzz my pleasure Jane let us know if we can help you find anything

  • I had similar experience with Dr Hochman but 'good for her' to be so well-prepared.

  • Good for you - praying for good outcomes for each of us and our various attempts to conquer or bring this nightmare to a halt, then one day a cure!

  • And don't we LOVE a doctor who, rather than being put off by a knowledgeable patient, embraces them and celebrates their desire to come to treatment well researched and with intelligent questions! So much better than "stay off of Google!"

  • And guess what? Word travels fast about the docs who value intelligent well informed patients and who provide compassionate and highly skilled care. ALWAYS set the bar very high for those in whom you entrust your care and functioning.

  • Can anyone here please fill me in on "... any underlying auto-immune conditions (ask your pre-RO doctors to test for Lupus, rheumatoid arthritis, Sjrogen's, and sedimentation rate)"? I was diagnosed with DD last week, and just got a copy of a blood test saying, "Homogeneous pattern is associated with systemic lupus erythematosus (SLE)". My mom also has DD.

  • Hi Donna Haney. Sorry to hear about your diagnosis. A diagnosis of lupus may make you in eligible for radiation therapy. If you enter the keyword "lupus " in the forum search box, you may be able to pull up forum expert answers on that topic and any patient discussions about it. Please let us know if you're having trouble accessing this specific information and we will attempt to find it for you. You may also wish to attend our coffee talk tomorrow morning with forum expert Dr. Lawrence Hochman, radiation oncologist.

  • Xxxxxxx Yzzzzzz - so sorry, but thankfully you have found this out now and can address it. Here is an excerpt from the Mayo Clinic site about Lupus symptoms and a link:

    The signs and symptoms of lupus that you experience will depend on which body systems are affected by the disease. The most common signs and symptoms include:

    LUPUS SYMPTOMS

    Fatigue and fever

    Joint pain, stiffness and swelling

    Butterfly-shaped rash on the face that covers the cheeks and bridge of the nose

    Skin lesions that appear or worsen with sun exposure (photosensitivity)

    Fingers and toes that turn white or blue when exposed to cold or during stressful periods (Raynaud's phenomenon)

    Shortness of breath

    Chest pain

    Dry eyes

    Headaches, confusion and memory loss

    http://www.mayoclinic.org/diseases-conditions/lupu s/basics/symptoms/con-20019676