I ve been searching the files stories and I apologize if the answer to my...

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  • Hi I am in same boat as are a lot of others here. I called doctors office and was told the best way to do this was to set up consultation on a friday and then start Monday and continue thru Friday. Back again in12 weeks. I have the animal problem also and both my neighbors who would gladly have helped just moved!! More hoops to jump thru.

  • Xxxxxxx Yzzzzzz, Dr. Guy Jones is a radiation oncologist with Tri Cities in Kennewick and he also serves as a forum expert physician. He's a very kind and compassionate doctor who goes out of his way to help patients get the care they need. My guess is that he and his staff can help you figure it all out.

  • Thanks for the tag, Leslie.

    Lisa: For out-of-towners where travel is a major burden, we will often go with the 8 fraction regimen. For that, you could get here on Monday and leave the following Tuesday or early Wednesday. Then you would not have to come back.

    The time off work and pet care is difficult, but our clinic can certainly help with the hotel/travel arrangements and keep the costs quite reasonable.

  • Pardon my intrusion on your conversation with Lisa but I have question about the 8 fraction regimen have not heard of that before. Does this mean one would not have to come back at 12 or 8 weeks? Thanks

  • That's right Brandy Maitland

  • Xxxxxxx Yzzzzzz Wow that would be so helpful to people who have to travel. Dr Hochman office did not bring that to my attention. Thank you so much Dr. Jones for bringing that up. Woot woot!

  • Xxxxxxx Yzzzzzz pretty sure that's included in our list of questions for your radiation oncologist. If it isn't it should be!

  • Xxxxxxx Yzzzzzz Thanks Leslie

  • Thanks for the reply. Once I get a little money saved up, I'm pretty sure you'll be seeing me.

  • I just did (2 weeks ago) like others have said. I drove 6 hours away to my eval on a friday..... stayed the weekend and then following week (I was fortunate to find a city that I had family about 1 1/2 hours from the hospital) so I stayed at families house for the week and drove the 3 hours round trip daily. At home I was fortunate as well.... I left my teenage kids home they took care of our zoo (the animals) and i had my 25 year old come stay the nights with them. It was a lot of preparation and some extra expense but I am hoping it will be worth it...... (so far so good) back for round two all over again in a few weeks.

    I've also heard people.say that they have called all over their town and asked oncologists in their area to take them on as a patient. I've heard that it's an easy protocol for the drs and that they can even get the protocol through this group...and might even have access to speaking with the oncologists in this group if needed.

  • Xxxxxxx Yzzzzzz RT is very expensive if you do not have insurance coverage. I think it's in the neighborhood of $5000 a hand or foot.

  • I've got blue cross/blue shield through my work (a hospital)

  • Xxxxxxx Yzzzzzz, maybe you could call TriCities and ask their patient advocates who help with getting insurance pre-approvals just find out what your out of pocket would be. That would help you to plan.

  • I just got mine done. Finished RT this past Friday. Will take a little bit to see if my feet can hold up better.

  • Xxxxxxx Yzzzzzz would you please clarify? 8 fractions for 24 gy rather than the 7 fractions for 21 gy described in the Seegenschmiedt study?

  • What's interesting to me in this post is that it seems there is at least one or more different possible RT regimens for people

  • My oncologist said if we did it she would do five treatments wait five weeks and then do five more

  • Only 2 have published results. The 30 GY and the 20 1GY

  • That protocol has the highest chance of success.

  • Good to know

    I'm meeting with the hand specialist the oncologist works with next week to go through everything

    Have her thoroughly check out my hand

    Make sure there's no other issues going on with my hand just because I have some pains

    I'm Assuming it's from the DD but want to make sure before we do the RT

  • Yes, Leslie. Good question. Based on the Seegenschmeidt data, the 21Gy is not as good at the 30Gy split-course. For patients in whom traveling is going to be a significant burden, I think it is reasonable stick with a single course (with no break) and just add an extra fraction, making it 24 Gy.

    That will undoubtedly provide better control than 21 Gy based on radiobiological principles, however we do not have any direct comparison between 24Gy and the 30 Gy split course.

    This approach is reading between the lines a bit, but in the absence of data, sometimes that's what needs to be done.

  • Xxxxxxx Yzzzzzz thanks for clearing that up! I thought maybe it was a typo LOL

  • Xxxxxxx Yzzzzzz

  • I am starting RT in a few weeks. I am going to Boston 2 1/2 hr ride each way. I have to go 5 days in a row then they said exactly 8 weeks later do another 5 days. It will be difficult/tiring driving but I plan on going back & forth. It will be worth it if it helps!

  • Has anyone had success in reaching out to RO in their city and getting them to work with the protocols for treatment? Just read that on this thread and was wondering

  • What do you mean by that Brandy? Do you mean if you prefer the 21 gy protocol and would like to do that versus the 30 gy? My guess is all you have to do is ask if they would do it for you because that's your preference

  • Guess I did not frame that question right. What I was asking is has anyone gone to RO who does not treat DD per se but had them follow the protocols for treatment. Someone mentioned that earlier .