I chickened out about asking about POTS at my last doctor s appointment but...
Yes! My dr calls me a halfie because I'm pretty sensitive to most meds. I take a half of a 10mg twice a day. There is research showing more is not better for POTS. I can try to find if if you'd like. My resting HR on it runs around 56.
Thanks. Currently I'm prescribed 10mg twice a day. I know where I'm usually at on the things that are normally problems for me but are also side effects. If it makes any of those things worse I will give my doc a call.
I have been taking it for a couple of weeks now and.it has alaon helped with sleep.
My granddaughter was put on it in July, was getting daily migraines and her heart rate was high. She has done 100% better since she has been on it. She is on 20 mg twice a day.
You probably want to start with just one 10mg pill a day, probably at night, it can help you sleep. You said he prescribed 10mg/2x's a day, right? Dr Alan Pocinki talks about pots/EDS patients needing beta blockers at night to stop adrenaline dumping that causes heart rate spikes and disrupts sleeps. I started with propranolol, I think it's the first most use. It didn't do much for me. I was switched to long acting metoprolol and that has been an up & down battle. I'm sensitive of my HR dropping and I haven't found he right dose yet but am working on it. The first week or so I had side effects and it was about 2 weeks before it started to lower my heart rate. A lot of people say that if one beta blocker doesn't work another one might. So if propranolol doesn't seem to help don't be afraid to try another.
Xxxxxxx Yzzzzzz, im going to have to read that article. I'm sensitive to meds too. I am trying dr Pocinki's protocol and am working on bb's. My dr has many patients who can handle large doses of bb's but I'm very sensitive to a low HR. If my resting was 56, I'd probably be having a panic attack I don't like it even in the mid- 60s. I wish it would stay like 73-75 but it's hard with a by. So I'm taking 1/2 of the smallest dose of metoprolol. My dr thought it was strange and it made me feel guilty like I have less of an illnes or something. It's hard becaus my HR still goes up when I try to stand or walk but I don't like the low resting heart rate so I don't know what to do
My 23andme actually shows I'm a slow metabolizer of many meds. (there's a webinar on it this evening). My rheumatologist was so surprised at how little dose I need of a bb. Sounds like you're very sensitive to them also. It may help to keep very hydrated if you're not already(?)
I am very wll hydrated :) I am interested in the webinar tonight! I had some sort test done by a different company my cardiologist used (PGxl labs?) I got the results and asked about them and he said they didn't use that anymore :( I think it only has two things flagged but I'm not sure if I've read it correctly.
Dr. Tinkle prescribes 10 mg in the morning and 20 mg at night for my daughter. It helps her alot!
My daughter has benefitted greatly from her prescribed Clonidine.
Thanks everyone. I'm especially concerned about it dropping my blood pressure too much. I've had issues with low blood pressure in the past (yes, I already drink lots of water and try to eat enough salt) and that was not fun at all. I tend to have low normal BP now. Plus I still haven't found the blood pressure cuff my 3yo hid last week so I can't monitor it right now.
It's the one of the go to's in the first line of treatment for a lot of the well known POTS docs. It has a specific action that helps rewire the nervous system. I've forgotten what that is, and I see the irony in that considering brain fog. LOL I was on 10 mg 1x daily, but have reduced to 5 mg. Small dose. I have really low BP w/orthostatic intolerance and it barely effects it, if at all.