I am recuperating from my Bilateral RT on my feet I m on day 11 after my first...

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  • The pain relief was baby steps but you are on the way!

  • I am so glad, I think this is the best time of year to have this done...when, I'm not so eager to get outside!!

  • great news

  • I hope you don't have fasciitis. It is worse pain for me than LD.

  • Equal for me

  • Me too!

  • No only LD...thankfully!

  • God is good!!

  • Xxxxxxx Yzzzzzz, Brenda Andrews Fortner What is the difference between the two? It seems that nodules can become quite large, so I just don't know anything about how these are differentiated...your help is appreciated.

  • PF is just inflammation

  • The reason I asked is that my sister was diagnosed with PF, but she has a lump. I told her that it may be LD...given family history.

  • Xxxxxxx Yzzzzzz if it were me I would see a podiatrist so she could know.

  • I have nodules on that foot, but I do not find them on the PF area. As Brenda said, see a podiatrist or get a second opinion.

  • Xxxxxxx Yzzzzzz who did your RT? And where?

  • I am having it done by Dr Meyers at Peacehealth in Vancouver, Washington. He is a really open, honest and kind individual. I feel fortunate to have found him (FINALLY.)

  • Xxxxxxx Yzzzzzz yes, a podiatrist. Well, I think she's seeing one. But, my experience is that not all doctors are aware of these diseases regardless of their brilliance. Perhaps with podiatrists that's not true. But, given my medical history recently in "rare" diseases, I realized that patients need to get smarter than their doctors in these cases.

    BTW, what part(s) are out of the field on the feet...sounds as if you know. Please educate me...mine is in the inside arch of my foot, but it sounds as if toes can become involved as well.

  • Xxxxxxx Yzzzzzz the toes is rare but happens. The "out of field" phrase is an RT term referring to the area that was treated during my previous RT which was on the inside of my feet. So the new growth under my toes is out of that previous field.

  • Xxxxxxx Yzzzzzz my podiatrist never mentioned Ledderhose. The ones I saw just used the term fibroma. They talked as if my fibromas was as common as a freckle. Oh that is just a fibroma, they are benign. You can try a shot, they work about 50% of the time, but they dont hurt. Hahaha-mine killed me! They are normally in the center part of the foot, normally in the arch area. I had one in the arch area but two on each foot up into the fat pad that was below the big toe...barely out of the arched area. Cindy Anderson and Sandi Palone have them under the toes which is much less common.

  • Verapamil does work for me. I have had around 5 new fibromas since RT, and it flattened most. It has even knocked back the ones under my toes.

  • Xxxxxxx Yzzzzzz did you get yours from Texas or try another compounding pharmacy?

  • Xxxxxxx Yzzzzzz I found a compounding pharmacy to make it for me right here in the town I live. They compound for vets :).

  • Walgreens has compounding pharmacies in some places too, but I could not find one around here. Not covered by insurance though.

  • Oh, so awesomely GOOD!

  • Xxxxxxx Yzzzzzz how much did you have to pay for the Verapamil?

  • 85.00 for a dose that lasts a couple of months

  • Xxxxxxx Yzzzzzz that's well worth the price if it works. Sounds as if a person has to go to a compounding phaarmacy?

  • Xxxxxxx Yzzzzzz I would like to go ahead and get this...could you walk me through the process? I'm sure I can get an RX, but, need to know more about where to go, etc.

  • Xxxxxxx Yzzzzzz you will have to call around in your city to find a "compounding pharmacy"

  • I have one I've used for years, so I'm good there.

  • Xxxxxxx Yzzzzzz or order here http://www.pdlabs.net/

  • The story is PDlabs is the best....

  • That's fine, but is their price twice as much too? Do you know?

  • Xxxxxxx Yzzzzzz others have said theirs got gritty from their local compounding pharmacy fairly fast and wasnt able to use it. So it may be cheaper in the long run

  • This is on PDLabs website: Transdermal Verapamil 15% Gel is a prescription that can only be filled by PDLabs. Be aware of local compounding pharmacies that will claim to make transdermal or topical verapamil that is the same as PDLabs'. Please click on the "Avoid Counterfiet Transdermal Verapamil 15% Gel" button for more information.

  • I tore the plantar fascia in my right foot hiking. Every time I stood up I'd rip the newly formed scar tissue. I also have fairly flat feet and my ankles pronate (bend inwards causing my arch to flatten). The result: plantar fasciitis or tears in the fascia and inflammation. Radiation therapy for LD took care of the pain from PF too!

  • My Verapamil does not get gritty, but it does have a date on it to be used by. I wonder if it a difference in what is compounded. I hope more RT takes away the fasciitis pain and the pain of the pulling that I have, as well as the itching. At night, the balls of my feet and toes feel like they are pulling in to contract.