I am newly diagnosed As in it was confirmed yesterday My doctor has...

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  • Thanks.

  • 10 years on Plaquenil, only nausea so I take it at bedtime. Methotrexate 5 years but came off due to side affects, bone pain, fever, chills. No hair loss but lost most of brows and eye lashes. Good luck and ask away. Always someone who has been there or is there.

  • Again, vanity. ..but did your brows and lashes grow back?

  • Nope! And it sucks, use to never go w/o mascara and haven't worn any in a couple years. =\

  • Which drug caused this?

  • Actually those things bother me less than the weight gain from all the meds.

  • Methotrexate for the hair loss.

  • Okay. I am completely overwhelmed at this point. I went to the doc originally bc I thought I had an under active thyroid and maybe a hormone issue. A year later and this... maybe that's why I am fixated in the hair and lashes.

  • *on

  • Nobody really wants side effects that effect our looks but I really don't focus on the aesthetics as much as the improvement in symptoms and we often have to jump through the hoops to get to a med that works and has side effects we can personally tolerate. I am older settled with a partner for many years he never has issues with how I look he loves me and always sees me as beautiful( lord knows how sometimes). I've been struggling with these AI diseases for a long time. I'm just happy to be able to still do a few of the things I enjoy. Good luck in your journey!