how to deal with uneducated doctors and EDS

%d comments
  • If you are being seen at a hospital, talk to the patient advocate. Rheumatology gave me a follow up appointment 8 months out. It was their soonest available according to them. After talking with the patient advocate they magically got an appointment for me only 2 months out. Good luck.

    It sucks not to have help when you need it.