Hoping I can get your opinions. I ve been diagnosed with POTs mcas and cfs
You are describing mast cell reaction, POTS symptoms and possible die off. The die off would trigger mast cells. I will let someone more experienced give you advice on the supplements. Feel better!
Xxxxxxx Yzzzzzz issues you may have sensitivities to salicylates....Aloe is high in salicylates which could cause mast cells to release.
Thank u I figured that's what it is. Just when u think u have 1 symptom under control your body plays a joke on u
Thanks for your input. I've been on aloe for over 2 mos at this dose and haven't had a problem, but who knows
My trick for finding out if I'm having a mast cell reaction , or hot flash, or whatever is to take a couple Zyrtec or a Benadryl... If it helps quickly most likely it's a mast cell reaction -and you should always carry your rescue meds, you're right MCAD is tricky.
I have a friend that is trying to get ketotifen and is unable to get it anywhere. If you don't mind, where do you find it?
I actually am on Zyrtec twice daily too. Sorry forgot to mention.
It has to be compounded from a compounding pharmacy in United States. Some people buy online from canandian pharmacies. I get mine compounded locally in Fayetteville Arkansas
Ok. That's the problem they are running into. They have ordered it from Canada but it's been several weeks and still they haven't gotten it.
Xxxxxxx Yzzzzzz thank you so much.