Hoping I can get your opinions. I ve been diagnosed with POTs mcas and cfs

%d comments
  • You are describing mast cell reaction, POTS symptoms and possible die off. The die off would trigger mast cells. I will let someone more experienced give you advice on the supplements. Feel better!

  • Xxxxxxx Yzzzzzz issues you may have sensitivities to salicylates....Aloe is high in salicylates which could cause mast cells to release.

  • Thank u I figured that's what it is. Just when u think u have 1 symptom under control your body plays a joke on u

  • Thanks for your input. I've been on aloe for over 2 mos at this dose and haven't had a problem, but who knows

  • My trick for finding out if I'm having a mast cell reaction , or hot flash, or whatever is to take a couple Zyrtec or a Benadryl... If it helps quickly most likely it's a mast cell reaction -and you should always carry your rescue meds, you're right MCAD is tricky.

  • I have a friend that is trying to get ketotifen and is unable to get it anywhere. If you don't mind, where do you find it?

  • I actually am on Zyrtec twice daily too. Sorry forgot to mention.

  • It has to be compounded from a compounding pharmacy in United States. Some people buy online from canandian pharmacies. I get mine compounded locally in Fayetteville Arkansas

  • Ok. That's the problem they are running into. They have ordered it from Canada but it's been several weeks and still they haven't gotten it.

  • Xxxxxxx Yzzzzzz thank you so much.