Hi everyone

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  • We found out my son has Asperger's syndrome, adhd, and sensory processing disorder when he was about 8 (guess that's where HIS crazy behavior came from). NOW, at age 12, we're pretty sure we're about to get an EDS diagnosis. We see a cardiologist on the 27th and a geneticist on 10/8 and then I guess we'll finally know. Oh, and he gets to have surgery for worst one of his flat feet once the cardiologist says he's ok for anesthesia. Hope you and your little guy are doing better soon!

  • We tend to be oversensitive, analytical and our minds never stop thinking. I'm only beginning to see how this affected my childhood. With my dtr I learned quickly not to let her get what I called back then overtired or all hell was going to break loose. Her face turned red and the temper came out. Because I was always spanked at that point I was determined not to handle it that way. I would snuggle her close, pray and stroke her forehead until she quieted down. Once she got her rest/sleep she was like a new person again. She's 25 now and was diagnosed around 17. Only a couple of years did we discover she has a patulous eardrum and at times is listening to all of her body sounds. That alone would drive me mind. I've done it a few times but it definitely wasn't anything like her. I also know now..haha...right...that she was in pain 90% of the time even when she was dancing and smiling. You see a lot of us are also people pleasers, sigh. I'm just glad I listened to my inner voice and even when I didn't understand what was going on that I was sensitive to her emotions. You might want to check out the Inspire site for EDS and research what other parents have discovered and what has helped them and then just listen to that still small voice that I believe guides all parents.

  • I joined Inspire's EDS site awhile back, but I haven't really gotten to explore it too much yet. What I've seen so far was very interesting though.

  • Go to the search bar and type in sensory issues, sensitivity and you will find tips people have shared. If you need help holler and I will try to help find you some resources.

  • Thanks, Ralinda. Caleb's 12 now and is much better on his sensory issues than when he was younger. He's still funny about certain things, especially his shirts. He will only wear short sleeve, V-neck t-shirts and he likes them on the loose side. When he's at home, he normally just wears underwear unless it's cold or someone shows up that he doesn't want to see him in his undies.

  • The cloth bothers him. I used to have to cut off the tags. Yesterday my husband and I were actually discussing how one could make underwear more comfortable because it binds and is uncomfortable. This would be a good thread to see what works for other people. On Inspire one time they had a thread where people recommended the brands of t-shirts they like. We are the pickiest of picky. Does he overheat or does he go towards the cold side. I'm cold and my dtr is hot. She has to have a a/c along with the central air and preferably set at 65! I really was bad at this one when my kids were small. I wish I had understood then.

  • Caleb's always been hard to understand too, but thank God, it makes more sense now than it used to. I'm so glad they make clothes without tags now! It seemed like I could never get them out of the clothes well enough to please him, even a tiny bit of what was left would drive him bananas. He's ok with the underwear now, but that used to be an issue too. He is kind of way extreme one way or another. When it's warm/hot, he's always complaining of the heat. When it's cool/cold, he acts like we're in the Artic inside the house, but won't wear a coat. Go figure. He used to be hot when it was cold and cold when it was hot and wanted the thermostat set for him, nevermind how uncomfortable it made everyone else. Talking about this makes me realize how some things have really improved over the years, but his behavior still stinks. Oh well.