Hey guys It s been a while since I ve posted an update so I thought I d do...

%d comments
  • I've been on Prednisone and Ramipril ever since; I actually have to go renew my prescription tomorrow, and though my symptoms HAVE improved (I no longer have any purpura on my legs and there doesn't seem to be any or very little blood in my urine), I'm finding it annoying for I keep getting sick. I'm currently fighting a sinus infection, and this is the 3rd time I've been sick since I've started taking the medication in October (compared to the 2 times a year I'm used to).

    Anyone else have this problem?

  • I wonder if you can explain the procedure of the biopsy to me? My 14 yr old son has been refered to Kidney Specalist from Great Ormond Street as there is a question over his kidney function. I ve been charting his protein & blood levels in his morning urine on a daily basis and they seem to be finally settling down. His appoent is 31st Jan and I'd assumed/hope that no further procedures will be necessary. Someone recently told me that as teenager (with Crohns ) they had to have a liver biopsy done and this was done with just local anaesthetic...:-(