So, I went home after a week, not knowing what the problem was, just with SED rates and CRP high. I was supposed to maintain 20mg of pred for 20 days and after that start lowering the dose(since I am in remission for a while and it was not necessary to use the pred because of the TAK). The doctor's appointment would be 2 months later (it seems they are not taking me seriously). The thing is, the first week home was perfect, I didn't feel anything at all.
One week later... the nightmare came back. Now it has been 3 weeks I came back from the hospital and I'm trying things on my own. Yesterday I had many tests of my hormones done (probably it has nothing to do with it, but we are "shooting everywhere" at this point). A few results have already come back and everything is normal (again) but the SED rate and CRP.
Seriously, I don't know what to do anymore. This pain is ending my quality of life, I barely can do my things because I am always tired for not being able to sleep.
Any ideas guys?