Hello I m new to the group as well as vasculitis As you can see I have been...

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  • I've been on pred most of my adult life... Sigh...

  • Welcome to the group. Sorry you need such a group but glad you found us. I hope you find the info shared here beneficial.

  • Hi Allison, welcome to the wellness group page. I have quite the history with prednisone and initially was on 900mg a day for 9 days. Then I was kept on 60mg for 2 years. Then slowly weaned down. As a reasult I also have osteopenia and avascular necrosis in my right hip. I am so sorry you have to be back on even a low dose of prednisone. There is an excellent newsletter you can sign up for called "Save Our Bones" and it is free. It is written by a doctor and when I read the newsletter it helps me to eat the way I intend. I have wegeners and am in my 5th year of my second remission.

  • Thank you!