Have any of you had to see a hematologist and or get a a triple bone scan...
WG/GPA 2013. I had bone scan and take Alendronate every week since that scan.
MPA/MOA/'14. I saw a hematologist for a few months because of my anemia. He also just checked my blood, but I was getting better. He released me from his care on Jan. I did not have a scan. In remission.
I have been seeing a hematologist for six years for anemia. Used to need three iron pills a day and now down to one. Many forms of vasculitis can cause anemia.
The hematologist explained that Vasculitis causes the bone marrow to be unable to produce hemoglobin hence the anemia.
I'm seeing him for WBC but other than that I don't know. Just like to be prepared for my appointments and idk what to do or ask or say
When I saw mine, I didn't know either. He told be up front that he had never had a patient with Vasculitis, and didn't know very much about it, then went on to tell me quite a lot!
ANCA vasculitis. dx 12/14 ANCA can also cause anemia. There are also bone marrow suppression problems caused by the meds. I take Ferrex iron 2x a day. I saw a hematologist when I was in the hospital, but not since then.
Thanks guys this is interesting. My whole life I have been anemic.... Until this past year and then I got a dx of vasculitis... Hopefully he is helpful :)
I saw a hematologist.. because I had anemia (suddenly)- He gave me intravenous. I also had positive pANCA. I said "Isn't that something to be concerned about?"
I should add that I had two transfusions while in the hospital because of the anemia and low platelet count. The transfusions really helped.