EDS NE MA Support Group and Marfan MA Chapter Reminders and Updates Jon Rodis

There are several other events and activities in various stages of development and once more is known, I will let you all know about them and all their detail and other details on the above as I get them. Plus, all leaders and organizers of EDS groups and organizations, if you have a notice on an upcoming meeting or event email it to me and I will send it to our EDS NE/MA and MA Chapter databases. Also, don't forget to post your upcoming meetings/evets/activities on the Team Up Calendar.

Ex. Our Friends/Collaegues-Meetings/Events Coming Up

April 29 - RI Support Group and Dysautonomia Support Network-Cardi's Furniture-2 pm - 4 pm--DSN President Amanda Aikulola to present.

June 3 - EDS Coalition's Hoofbeats Walk/Run-7:30 am - 12:00 noon

Always feel free to contact me with questions on everything and anything. Hope to see you this Saturday at the Symposium and/or another upcoming activity, event or meeting!

My Best,


President-Massachuset ts Chapter of the Marfan Foundation

Co-leader-EDS NE/MA Support Group

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