edited a doc in the group: SJIA Systemic Juvenile Idiopathic Arthritis.


Iowa - Emily Powers (17), Ft Madison, IA (Dx @ age 10) - Univ of Ia Hosp (Dr Sandy Hong/Peds Rheum) - Merry Powers (mom)


Kentucky - Meagan Aaron (Gage, 6), Louisville, Kosairs Childrens Hospital



Marylan d 


Michigan - Shayna Tondreau (Kayla, 11), Maple City, MI (near Traverse City) Rheum is out of University of MI, 

Michigan -Tina Beauregard mother of Allyssa age 2 Vanderbilt Michigan Rheum Dr. Birmingham in Helen Devos Children's Hospital

Michigan -Carrie Dattels (Jillian age 3), Holland, MI. Rheum is Dr. Birmingham at Helen DeVos Children's Hospital



Missouri- Angie and Ryan Peters (Gabriel age 6) St. Louis, MO  Cardinal Glennon Hospital, Dr. Peri Pepmueller

Missouri-  Andrea Fansler (Emerson, 6) Columbia, Missouri, Jonna Kenniston (Justin age 14) Lake of the Ozarks  University Childrens Hospital, Dr. Pathwarden 

Missouri- Kristen Maxfield (Carson, 1) St. Louis, MO; St. Louis Children's Hospital, Dr. Bazsis


Nebraska Kim (mom) Katie (age 9) Children's Hospital, Omaha


New Hampshire

New Jersey - Michelle & Phil Cruz (Caitlyn 2)

New Mexico - Melanie Yost Pfeiffer (Beverly 7) Texas Scottish Rite

New York -   Amy & Mark Rosenkrantz (Carter 2) Port Crane, NY  Rheum is Dr. Lerman at CHOP

North Carolina- Leah & Matt Bush (Ezra age 1) Duke Pediatric Rheumatology

North Carolina - Kari & Paul Cupp (Raegan-8) -Levine Childrens Hosp & National Institutes of Health

North Dakota

Ohio - Tim and Jessica Haddix Cleveland, OHIO (Hanna 6) Dr. Elizabeth Brooks Univeristy Hospital/Rainbow Babies and Children's Hospital

Ohio- Mike and Holly Holliday (Rachel,9)

Ohio-  Nate Pennington Nathan & Christina Pennington (Bryn, age 7), Aurora, Oh - Cleveland Clinic - Dr Zeft.


Oregon-Tammy & Curtis Ford (Dalton 12)

Pennsylvania- Steph & Joe Slonaker (Keira 5)Pennsylvania- Bonnie Flynn McKeown (Miranda 17) Philadelphia, PA ~Dr Svetlana Lvovich @ St. Christopher's hospital for children and is also followed by Dr Lexi Grom @ Cincinatti children's hospital.

Rhode Island

South Carolina

South Dakota David & Alicia Schonhardt (Catherine 8, dx @4) Dr. Thomas Mason @  Mayo Clinic in MN

Tennessee    Christina and David Cruz (Marco 8), La'Dawn Helton (Lillian, age 7)

Texas - Kim & Jeff Barnett (Brooke 6)

Texas - Julie and Kawika -Katy, TX (Kekoa 6)

Texas - Toni & Kelon Morley (Ryan Kate 11) - Spring, TX - Dr. Muscal @ Texas Children's Hospital in Houston

Texas - Stefanie & Chad Greiner (Alexandra 9) - Cibolo Dr. Joe Cole

Texas- Adan Ruelas Age 6-Houston, TX

Texas- Jeri Tellez (Will 16)- The Colony

Texas-David & Mary Medders (Delia, almost 3) Dallas, TX

Texas- Becky Milne (Maren, 11) Arlington, TX~Dr. Punaro @ Scottish Rite Hospital in Dallas

Texas-Paul Kuykendall (Heather 14)Paris, Texas - Dr. Punaro @ Scottish Rite Hospital in Dallas

Texas- Jennifer Blair (Justice, age 7) Kilgore, Tx. ~ Dr Punaro at Scottish Rite.

Texas- Kristen Hauge- daughter Ava now 6, was diagnosed at age 2 with SJIA. We live in Longview, TX and travel to Scottish Rite Hospital in Dallas. She is under the care of Dr. Punaro

Texas-Stefani & Jade Webster (Jett dob 12/19/2005) Forney -Dr. Punaro Scottish Rite

Utah-Shelly Zaugg (Clara 2) North Ogden, UT - Primary Children's Hospital (Dr. Stern)

Utah - Anna Carlson (Sophia 18 months), Saratoga Springs, Utah - Primary Children's Hospital (Dr. Hersh).

VermontVirgina-  Susan Caldwell Megan (age 9) Spotsylvania, Virginia. She sees Dr. Gewanther in Richmond VA. 

Virginia  Michelle Bowers ( Mikayla 15) Hampton, VA - Dr. Aarat Patel - Richmond VA


West Virginia

Wisconsin - Kirsten Walters (self, living SOJIA for 19 years);

                    Katie Miloch, mom to Mackenzie, age 18 months-diagnosed SOJIA at 8 months.  Wisconsin Rapids, WI--Dr. Grant Syverson of UW-Pediatric Specialty Clinic in Madison.

                    Jason Scheer Cedarburg...Dad to Madison. Diagnosed at 6yrs, Now 10yrs. Medication free for almost 1yr on "Wheat Belly" diet


Dubai Pankaj Raina (Ranveer Raina, 6) Dr. Humeira badsha in dubai UAE and Dr. Suma Balan in kochi india. 



Finland -

United Kingdom-Anita&Mike Hyde (Emma 10)

France- Nat Smith-Billiard (Zoe 3) We are Australian living in France.                          


Cana da - Jennifer & Jeff Fraser (Kenzie 7), Carmen (Kevin, 7)

Canada- Kelly Dodge-Burke (Devin age 10) Halifax, Nova Scotia

Canada - Susan Forsythe (Max 12) Halifax , NS  Dr. Bianca Lang, IWK Children's Hospital

Canada- Jennifer and Peter Gautreau (Evan 8) Ottawa, Ontario-CHEO

Australia - Renae Woodland (Hannah 9) Queensland

Australia - Ashlea Hodgetts (Campbell 7) Tasmania

Australia- Lydia Bresolin (Aiden 16 ) South Australia Dr Christina Boros- Womens & Childrens Hospital Adelaide SA

 Ireland - Marie Kennedy (Jamie 2) Limerick. Dr Orla Killeen/ Dr Emma McDermot, Our Ladys Childrens Hospital Crumlin, Dublin.


 New Zealand

%d comments
  • Madeline~ We go to Children's Hospital in Omaha Nebraska. Diagnosed 3 years ago at age 16.

  • Isla is almost 19 months old and she was diagnosed at 14 months. We live right outside of Savannah, GA but she sees Dr. Ramsay at Children's Healthcare of Atlanta- Egleston.

  • Daxin is 12 months and was officially diagnosed 2 days after his first birthday. We are from Alabama, in a small town outside of gadsden. We see Dr. Weiser at Birmingham Childrens Hospital

  • Noah is 6 years old, and was officially diagnosed at 2 years old. We live in Ontario, California and see Dr. Chaudhari from Kaiser.

  • We go to u of michigan in Ann Arbor michigan my son is 5 year old has sjia,mas and kidneys failed too. Diagnosed at 21/2 years old. See Dr mark hoelzel

  • My daughter, diagnosed Jan. 2017. Carrie Tingley hospital, Albuquerque, NM

  • Can you add Jae 11yrs old, MAS in 06, dx in 07, seen by Dr. Grom at Cincinnati children's. Can't get to files from my iPad.

  • Ronan 8 was diagnosed at 2, we live in Canberra Australia and currently there is no paediatric rheumatologist in our city and we have been lobbying for 5 years via local and federal government.

  • My daughter MeShae dx with SJIA at age 7. She is now 12. She has a rough year adding Crohn's, dysautonomia, and a few others...we live in Cullman Alabama. We see Dr. Mannion at Children's hospital in Birmingham. We just recently went to consult in Atlanta at Emory hospital.

  • Carson, age 8, diagnosed Feb. 2015, hx of secondary HLH. We live in Hesperia, CA, USA and receive treatment at Children's Hospital Los Angeles.