Does anyone have any experience with thoughts on using digestive enzymes
I'd say do what makes you comfortable. If more water improves it, drink it. If it doesn't, don't. You're certainly drinking enough already.
Stool problems are a part of automatic dysfunction. So are gastroparesis and dumping syndrome. They also can be the result of mast cell problems, which can come with EDS and POTS. It's all linked.
I never had luck with anything over the counter except a little with yogurt. Just yogurt improved things marginally for me. I tried enzymes, tinctures, probiotics, and anything for stomachs. I'm glad something is working for you. My guts only respond to cromolyn any marked way. That's for mast cell problems.
I don't know if I have mast cell issues. How do you find out? I guess if the enzymes work it's a good thing. I'm also planning to try adding psyllium husk. How do you treat mast cell? Maybe that would help with my bowel issues.
Mast Cell is mainly treated with antihistamines, this may help to describe it.
Sonja Lacey thanks. A lot of these symptoms are EDS/POTS related anyway. How does one tell the difference between Mast Cell issues and just plain EDS and dysautonomia?
You are right it can be difficult, MCAD you would have more involvement of skin irritations and you will see a pattern of symptoms after exposure to foods or environmental exposures.
thanks. No major skin issues here. Lots of other issues tho
Sonja Lacey that's not necessarily so. I have MCAD with no pattern of exposure and reaction. It's generalized inflammation for me. It's always there. Nothing specific makes it flare up.
interesting. Is there a test?
Xxxxxxx Yzzzzzz when was your last MRI to check for CCI? Also what is a typical meal plan for you daily?
What is CCI?
CCI craniocervical instability http://www.thepainrelieffoundation.com/craniocervi cal-instability/
You'd need to see a doctor familiar with the issue. There are several tests to take.
I got one about 6 months ago. Why?
I don't really have a typical meal plan :-) Usually greek yogurt in the morning maybe with waffles or sometimes eggs with veggies. Anything goes for lunch and dinner (typical foods for a family with kids). I also eat fruit and cheese for snacks. I eat late at night too because I'm up late.
I've been trying to lose weight so I've been eating more veggies and fewer calories overall.
One thing I found out for those of us with chronic illnesses we don't eat like we normally would either do two were too tired, in pain etc. A lot of us like fiber you're supposed to get like 28 grams a day so for about a week and try adding in more fiber and see if that helps you would be amazed that it does I was having diarrhea like probably 5 - 12 times a day it was like Pavlov's response anything went my mouth I was running to the bathroom. I added a little bit more fiber not even the full amount some people need it I didn't and it fixed the diarrhea issues that I was having the constant issue with now I still have other gastro issues but I've had those all my life
Thanks. Psyllium husk? I have some capsules I was thinking of trying.
Have you tried Digestive Enzymes. They have made a big improvement for me.
Yes I'll take those but because I have to take doxycycline everyday it messes with those things so it's like a counter active measure but doesn't work like it would on a normal person because of the doxy cycline
oh ok :-(
Note that fiber helps with loose stools. I add psyllium to brown rice, cooked in double water. MCAS causes a ton of diarrhea, as Miryam Weisberg said.