Can anyone tell me in English i e Not medical jargon what a subluxation is...

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  • Thanks Amy, interesting info here. I might not be as crazy as I thought I was, more eccentric maybe lol

  • I also struggle to understand a lot of the terminology. I have found out a bit as i keep reading xxx

  • When stranding (or laying) I can sublux both of my hips in and out at will. I've done it since I was a kid as a "trick*. I try to avoid doing it these days, but they naturally just do it sometimes when laying down.

  • I will say that it never has and doesn't feel pleasant after.

  • Dunno if it will help (this works with small dislocations.) But something you might want to try:

    Finding a way to get my hips back in took decades. I’d found a way to get every other joint back in before I finally found a way to get subluxed (partially dislocated) hips back into place.

    To get my hips back in. I stand on one foot (the good one) with only a bit of weight on the ball of the other foot and then move just the one hip joint (the one that's a bit out) at the hip in a small horizontal circle, making circles about 6 or 8 inches in diameter. That usually pops it back in.

    If that doesn’t work for you at first, take some weight off the ball of your foot (so your leg is just hanging, and gravity is pulling the leg down a bit harder) and try again.

    If that sounds painful, it isn’t. I know when the hip starts to go out, and if I get it back in then, before it wanders too far, it's not painful to get it back in.

    The following ball-squeezing method sounds great to me, too - but my hips usually go out while walking outside, so it's convenient to be able to get them back in immediately. Therefore, I’ve never actually had to resort to the ball-squeezing method.

    To do that one, you squeeze a ball between your knees while on your back. Which works because it pulls your hips apart. (You may have to wiggle your hips a bit.) Ideally the ball should be a bit less than a foot in diameter.

  • I can see my right him subluxation when I'm on my side and move my right leg back and forth. It's kind of a roll with a pop. But I think my Pilates really helped keep it in joint. Now I can't sleep on that hip due to pain. When my shoulders subluxate, I feel the shock first, then the pain, especially after the adrenaline of popping it back in. Each subluxation if my shoulder limits my range of motion. And I have to be careful. I'm the brilliant person who dislocated her shoulder AND pulled all the ligaments in my neck and trapezius trying to wiggle out of my sports bra after class

  • Thank you everyone for info. Sadly I'm at the end of my journey but for those of you who offered help and support you won't know how much it meant. Good luck x

  • You're never at the end. I don't know here's you live, but there are Pilates studios where apprentices (like me) study for years. Yes, we study at the ballet and broadway for our testing, but I intentionally studied with two master instructors who had severe medical issues. Megan had advanced MS, and Moss had Parkinson's. Our clients were mostly similar, but many also were undergoing chemo. The goal was to strengthen the ligaments around the bones (gently). All our clients were prone to falls, and our goal was to keep the bones from subluxations. At that point my Ehlers wasn't so pronounced, although two of my vertebra sublixated during advanced training (nothing a normal client would try). You could hear them go--pop, pop, and then the pain... Oddly, that was rounding forward. I climbed into the machine that helps you stretch backwards, and they freaked out on me because that can "put the vertebrae out of joint." I told him I work with special populations, including myself, so not to worry. It put my back into place. If you're interested in this, contact June Hines or Megan Egan on Facebook. My body has completely deteriorated since I went back to school and stopped Pilates. I'd like to find a way to incorporate the two (I'm a clinical counselor). But it's never too late. Megan walked with a cane until she had her baby. Then she became terrified of falling, especially with the baby. She learned to fall without hurting herself. And Moss, after 17 years, he's still alive, and teaching (with Parkinson's). Don't give up. Research Pilates. It was literally created for people too ill or frail to get out of bed (I've been in bed for three days). It's time for me to decide whether I need a working body, or a PhD. I'm sorry if this seems like an advert for Pilates, but what I'm telling you is that there ARE treatments out there (even gyrotonics) that will strengthen the muscle and ligaments around your bone.

  • I'm hitting brick walls no one will diagnose anything blatantly told it's all in my mind. I can't function now on the most basic levels I. Ant even change my daughters nappy, I'm in constant extreme pain, I have no money to seek even basic help independently I see m family m husband giving up on me yelling constantly Ti have no one and nothing m wee girl is growing so fast I am watching from the sidelines I so t want to Be without her it I'm destroying everyone's happiness I have no place in this world

  • Yes you do you are not alone

  • Are you in England? I know they give sliding scales, and Pilates is often prescribed. If you get a diagnosis you'r classes may be free. Even just working with a trainer. Don't take pain meds before so they know what you can really do, and DO NOT let anyone manually stretch you!

  • I'm in the U.K. But can't get a diagnosis of anything other than I must be mentally unstable

  • I feel it. Watching my life and my family fall apart in front of me is too much. I can't get a single dr to listen they assume I'm insane, was offered counseling yesterday, told I'm crazy and to forget about it and live a normal life. I have been ill twenty years, can't function and can't carry on, i have nothing left to carry on with, I'm totally mentally and physically depleted

  • Xxxxxxx Yzzzzzz give up honey. At age 50 I was diagnosed with a possible. My family currently has three other cases. I was told it was my mental state until I had a doctor reported internal weak fragile tissue. I pray for your diagnosis.

  • I have hip issues and i'm a fortunate EDS patient. My chiropractor aligns my hips. Symptoms include nerve pain into my leg, and feet. Pain radiating into my back and down through my abdomen. It also causes a sluggish or complete block and stop of my colon and intestines. My chiropractor doesn't adjust me unless I really need it. I don't go weekly or even monthly. I only go when i have no other choice.