Any thoughts 11 yr daughter has Chiari and had tethered cord release already
My son does that with pain. I have yet to figure it out. However, if his head is hot to the touch and he's either a low temp or 99ish, I know it's his head hurting. He also gets very agitated and won't sit down or still.
Umm, I just saw your name. Lol
I love you and Super Thomas!!
Has she seen anyone at sibley here in town? That's his cardiologist.
We love you!!
She is pitiful I am in tears I am so frustrated and I don't know when to just go and deal with the money and crap later or wait the pain out and let her rest. I have fought for years with it myself and I have to just wait since I am always "making this crap up" since you can't see it. I hate this
Have you talked to dr Heger's office yet?
They need a referral from her pcp, but that's all. They got him as in very fast.
Only to have the meds they tried to help with "childhood migraines" -ok by dr to prescribe- which did not help at all. But no she hasn't for anything else. I am debating on calling pediatric associates and seeing who is there today
We just got the referral for Momo not Emi to Heger and I am thinking going to pediatric dr today will push faster for emi too
Call, is that who you use? Dr butler referred us to dr Heger and I got an appointment within hours of her sending the referral. She's not there Tuesday's, but is on Wednesdays.
That is who we have been she knows tons on EDS thanks to all of us huh!?
Yes! She's great, no balking, she sends any referral we need
And she did her residency there and was on staff a few years, so she's a great inside source