Another questions my husband is dealing with late stage chronic lyme disease...

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  • It can help if you find a nutritionist that understands Lyme. Try making him smoothies with whey protein (if dairy in this form is ok). I used Bryan Rosner's recipe, but I am ok with dairy.

  • I talked to someone from Herb a life and they have some shakes that may be an option

  • I do not agree with taking out gluten especially if he's not seeing a difference in symptoms because of it

  • Really. He sees no change in being this restricted with his diet. He went through an elimination diet and saw no change in symptoms also. He has to be practically sugar free because of the yeast overgrowth on all the antibiotics. But to my understanding of he avoids gluten and dairy it will help optimize his immune system so he would not need to be treated as long and has a better chance to recover (if you want to call it that)

  • Xxxxxxx Yzzzzzz Lyme is not a one size fits all, sugar really just refined fake sugar yes! Dairy keep to a minimum and gluten is fine if your body doesn't have an effect taking it out. He's loosing on so much nutritional value from the foods he used to eat with gluten. Hence losing weight because he is now deficient. You eliminated and you know what doesn't make a difference so go ahead and make him them pancakes and French toast or pasta and bread. Not everyone is sensitive to that stuff. Many lymies are but not all like myself and another group of us that had zero effect from eliminating the no go Lyme diet stuff. Most who do benefit had a poor diet to begin with and are too much sugar dairy and gluten so they did feel better. I say put him back on it! I'm recovering and I eat gluten better than when I was off of it

  • I told my husband this. I do make gluten free pancakes a lot and they take pretty good.

  • Lol well I'd say go back to gluten Zoanna Rebel Green will also agree with me and reading your husbands situation as well

  • Out of curiosity, where are you getting this information?

  • I've started researching stuff when I went "free everything" found out when you cut out gluten you also usually go nutrient def as you are eating like bird foods and not getting all the vitamins minerals and antioxidants all the good stuff your body needs that accompanies foods with gluten. Think about it he's now not eating real foods anymore and most people don't read how to support their body when going gluten free. Also it's a huge change especially when you cut it out and you've had it forever kinda like trying to back peddle on a bike but it's not going anywhere . Just google why gluten is good for you or why you need it in your diet. It's not the gluten itself but everything else that disappears with it.

  • Interesting. Thanks

  • Shaklee has gluten free, lactose free shakes with high probiotic and protein. Helps me because I don't have a big appetite

  • Not true about going nutrient deficient on a GF diet! In fact, if you replace the bread/pasta with healthy veggies, both the green variety and squashes/gords, your nutrient intake goes UP. Wheat products are not actually that nutritious. Veggies have far more vitamins and minerals. I am on the AIP plan (auto-immune paleo). In addition to lots more veggies, it encourages using fat from meat for cooking (like beef fat, lard and duck fat). Lots of great micro-nutrients in the fat. I take it he skips lunch because he's out on the farm? Maybe pack him a lunch?

  • Yes. It's hard to pack him a lunch with how restricted his diet is. Plus he is miserable knowing that he can't eat what he use to love. He doesn't feel any different with or without gluten. If adding gluten to his diet will add a little joy to his life then so be it. As long as he stays away from almost all sugar and he doesn't have much for dairy, we will try it.

  • By the way this is a little of what I found. "Gluten-free diets often lack sufficient nutrients, reports the September 2006 issue of "Practical Gastroenterology." These nutrients may include calcium, fiber, iron, thiamin, folatem, riboflavin and niacin. Removing gluten unnecessarily might also contribute to vitamin deficiencies that lower your immune system."

  • Because he skips meals and doesn't replace the nutrients going gluten-free he is becoming more malnourished than anything which in the long run is hurting his immune system instead of helping it to fight his Lyme disease. I think he will try gluten for a little while and see how he does. Right now the doctor I think needs to switch up his medication but she won't do it until his next appointment in December

  • Xxxxxxx Yzzzzzz it absolutely is true dear for most who go on that diet. People don't adjust well and dislike "good" foods so the limit themselves to the little that they will tolerate on that diet. Which is FACTS! Not all people who choose that life style do but a large majority as they don't know what they are loosing out on and don't know how to replace it. Just because you aren't and you think it's the holy grail does not mean it is for others! Push comes to shove he's losing weight on that diet and it's unhealthy for him. Once again diet is not a one size fits all and there is not true right or wrong way, you do what makes you feel best and he's not seeing any difference other than lots of weight loss so it's not doing him any good anyway

  • Xxxxxxx Yzzzzzz you are exactly right! This is what I found out when going the nutty craze Lyme diet didn't work for me either and I was a nazi on it. Followed it to a T and it did nothing. Not everything is what everyone says it has to be. You do what's right for you and your husband to get through the disease with as much sanity and grace as you can. ☺️

  • Thanks Amanda Panda. Our life has been hell the past year going through this and it made it worse when he found out he should change his diet that way. We are struggling in our marriage because of this nasty disease. On top of it we have two young children , 2 years old and 7 month old. I was 2 months pregnant when he was diagnosed with Lyme disease. You just helped us make the decision to put him back on gluten foods and he actually did go grocery shopping today and picked up things he had not had for a while. I can also make sure he has a lunch packed so he can grab it from the refrigerator out in the garage so he does not have to come in for lunch. I will also be looking into protein shakes for him to add to the meals he is supposed to be eating to get him to gain weight.

  • Xxxxxxx Yzzzzzz I'm not saying it's a holy grail. I'm saying that going GF does not automatically equal nutrient deficiencies.

  • Xxxxxxx Yzzzzzz I'm glad to hear, you only have one life to live and you are already suffering in many ways enough. If things aren't working positivity for you and it took away something you were happy with there should be nothing and no one to tell you it's wrong at this point to go back to it. I understand the relationship issues as me and my beau have our own with the disease, I've gains weight. Never lost a lick on that diet and I did it religiously for 6 months. I also have hashmotios and high cortisol which is what's making me keep the weight on. But I felt zero difference with the food. I do agree with limiting sugar and keeping dairy to just cheese in some foods just limited. Also most people who enjoy all the "benefits" from the Lyme diet had a poor American diet to begin with, we are considered gluttons in the u.s. Because of our plate sizes and food intake. So they loose weight, feel great because their sugar intake was high, carb intake was high. So yeah they feel better and great! Which is wonderful for those people and I say continue with it. But some of us it does more harm than good or nothing at all because we were already eating a well balanced diet like myself.

  • Xxxxxxx Yzzzzzz, I understand where you are coming from also. Is hard to change the diet completely to where he will get all the nutrients he needs. He loves to go out to eat so being completely gluten-free has been concerning to him and making him very unhappy. I also don't want to be making two different meals every time because the rest of us are not gluten free. I do make sure the meals I make are sugar free and dairy free. Like I said we will see how he feels and if he starts gaining some weight while eating gluten.

  • Pretty much since it's a huge fad and people only listen to don't eat gluten they don't do any research how to support your body when you do. The percentage of people who know how to safely go gf are minimal as well as the ability to turn your lifestyle upside down. It's poor advice to just say no gluten because there's so much more sacrifice that comes with it.

  • You do you heather and try different things see what works and what doesn't. Plus he and you both deserve to be happy through all this shitty Lyme mess

  • I hope it works out for him, and for you. Lyme's just sucks

  • Thanks to both of you. Yes, Lyme disease sucks. And unfortunately I may be dealing with it also. I have my first appointment with an llmd in December.

  • Xxxxxxx Yzzzzzz good luck and feel free to pm me anytime

  • Thanks Amanda, do you mind if I friend you?

  • Xxxxxxx Yzzzzzz but of course you may

  • It won't let me. It doesn't give the option

  • Xxxxxxx Yzzzzzz oh ha security settings hold on

  • Thanks!